Tuni Harrison Centre for Research, Training and Advocacy: To Learn, To Teach, To Advocate
  • The Genesis
  • Research
  • Training
  • Advocate

Tuni Harrison was an infant with Down Syndrome who had been found abandoned under a bush, hours away from Kolkata. Unable to find another facility for her, the West Bengal Child Welfare Committee visited ShishurSevay requesting that we take her as well as another severely ill child, Masum (the child in the dance pictured on the cover of this report). However, Tuni also had a severe congenital heart condition often found with Down Syndrome. In spite of our care, including ongoing oxygen at home, surgery at a private multi-specialty hospital, and a renowned cardiac team, she did not survive. In her short life, however, she received the essence of what ShishurSevay does. She came nameless, Baby Tuni, and she died with a name. She came alone but died with a home, a mother, sisters, aunties, and uncles who loved her. She was buried with the full Hindu rites given to an infant and we bathed in the Ganges as we sent her back to be with her Gods.

  • Identify steps and processes to make inclusion successful.
  • Encourage and participate in academic research regarding the inclusion of those with and without disabilities in living environments, schools, and communities.
  • Some research is already being done by Professor Anjali Forber-Pratt at Vanderbilt who reports in her paper:

“Having a foundation of inclusion that permeates social interactions, learning, living a recreation is part of what makes ShishurSevay unique. They are an inclusive school in a part of the world where many may think would be impossible."

  • Conduct workshops for parents and teachers related to inclusive education and living.
  • Become a training site for interns from universities and other organizations regarding the inclusion of children
  • Develop a scalable, replicable model of ShishurSevay and promote this as a model of care in the hierarchy of care of orphan and disabled children.
  • Present this model to government agencies responsible for care of children and advocate for inclusion of children with disabilities so they are not relegated to lives of isolation.
  • Advocate for funding agencies and foundations to sponsor creation of other homes like ShishurSevay.
  • Become the consultants and train others to create homes on the model of ShishurSevay.
  • Advocate for accessibility as a necessary requirement of inclusion.

Report On The Case Study Of Shishur Sevay And The Ichche Dana Learning Center
Anjali J. Forber-Pratt, Ph.D. Dominique Lyew, B.A.

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A Model Case: Specialized Group Home for Girls with Disabilities in India
Anjali J. Forber Pratt & Dominique A. Lyew

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